top of page
Steph's Journey
Finding hope after life's hardest seasons.


Jax's Story: A Ten-Year-Old Boy's Journey Through Struggles and Strengths Amidst a Life Limiting Disease
This is Jax's Canavan Disease story, shared through his journey, his strength, and the life he has lived beyond the expectations placed before him. Hey everyone, I'm Jax, and I just turned 11, which is kind of a big deal! I was born with a rare brain condition known as Canavan Disease, a type of leukodystrophy. It's a life-limiting disease, and my time here compared to most is short. This condition comes with many challenges, and it takes a whole team of incredible people to
Steph
Sep 208 min read
bottom of page