Resilience Stories

My experience when my son was diagnosed with his devastating life limiting disease called Canavan disease. That was the day my life turned upside down and inside out. My lived experiences being a mom to a medically fragile child. How being a special needs mom looks different from others and the challenges we face. The fight for my life dealing with grief loss and trauma. The strength it took to climb out of a dark place and deciding to make the best out of our situation.

The horrible accident that almost took my medically fragile child life. The fight for his life to keep fighting. Jaxs story being the most resilient person I know. The trauma and heart ache my family went through. Advocating for your child in the hospital setting. Little hero's that inspire us and the resilience we all have within us. The hardest times clears a path for unexpected blessings.

Grief changed me in ways I never expected. I became angry, lost, and disconnected from the person I used to be. This is the story of some of the darkest years- and how I slowly began finding my way back.