Sitting at the edge of my bed in our third-floor, two-bedroom apartment, tears streamed down my face as I processed the news about our beloved baby boy. We had spent two weeks in the hospital, conducting every possible test. At just two months old, Jax had endured more poking and prodding than anyone I knew. After discovering his diagnosis was a leukodystrophy, we were finally allowed to go home. A leukodystrophy is a disease in the brain that affects the white matter. This d