My journey raising a medically fragile child the last ten years has been the most challenging and rewarding period of my life. It was undeniably the hardest time and yet most fulfilling time of my life. I lost the life I envisioned, the relationships I expected, and the son I thought I would have. I faced financial difficulties, marital issues, loss of identity, a crisis of faith, debilitating depression, low self-worth, diminished self-esteem, a lack of joy in life, and batt

My experience when my son was diagnosed with his devastating life limiting disease called Canavan disease. That was the day my life turned upside down and inside out. My lived experiences being a mom to a medically fragile child. How being a special needs mom looks different from others and the challenges we face. The fight for my life dealing with grief loss and trauma. The strength it took to climb out of a dark place and deciding to make the best out of our situation.