My experience when my son was diagnosed with his devastating life limiting disease called Canavan disease. That was the day my life turned upside down and inside out. My lived experiences being a mom to a medically fragile child. How being a special needs mom looks different from others and the challenges we face. The fight for my life dealing with grief loss and trauma. The strength it took to climb out of a dark place and deciding to make the best out of our situation.

Dealing with grief and loss. The dark times after receiving my sons devastating diagnosis, suicidal thoughts, finding spirituality, healing, personal growth