This is Jax's Canavan Disease story, shared through his journey, his strength, and the life he has lived beyond the expectations placed before him. Hey everyone, I'm Jax, and I just turned 11, which is kind of a big deal! I was born with a rare brain condition known as Canavan Disease, a type of leukodystrophy. It's a life-limiting disease, and my time here compared to most is short. This condition comes with many challenges, and it takes a whole team of incredible people to

The horrible accident that almost took my medically fragile child life. The fight for his life to keep fighting. Jaxs story being the most resilient person I know. The trauma and heart ache my family went through. Advocating for your child in the hospital setting. Little hero's that inspire us and the resilience we all have within us. The hardest times clears a path for unexpected blessings.